Out of the blue I get a letter informing me of a Neurosurgery appointment on 7th September, some 5 days after an existing Endocrinology appointment.

Now I always knew that one possible outcome was surgery, but to get the notification out of the blue was a bit of a shock and once again I find myself wondering about the lack of ’emotional’ care present in the system.

What’s interesting is the advice in the letter that if a decision is made to go ahead with surgery I will need to stay up to 5 hours for a pre-surgery assessment. Well, if they think I am going to make a decision of such significance on the spot then they can think again!

Now to go and find out about surgeon outcomes and how I can compare who I am being offered with the rest of the country. Also, what questions do I need to ask about the potential surgery?

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